Meet the Kids
When Beckett was 12 days old, he was diagnosed with cystic fibrosis, a genetic defect that causes the body’s mucus-producing cells to produce thick secretions. For 30 minutes every morning and night, he wears the vest that beats on his chest wall. The disease is relentless.
65 Roses takes its name from how young children tried to say “cystic fibrosis.” DeCinces, in the early years of the event, remembers meeting CF children who would die before they were 10. But with early diagnosis and medical advances in treatment, many people with CF are living into their 30s, 40s, and beyond.
“Watching Beckett grow up has been very emotional, and seeing how my family has handled everything to try to give him the best chances at living a full life has made me very proud.” Said Amy Williams. Beckett’s parents, T.J, who is in real estate, and Amy, who designs new home interiors, are self-employed so they can be home to care for Beckett and their older son, Brody, 4. They deal with CF as a family. They love. They live. They play. And they pray for a cure.
Emily was born on July 18th, 1995 in Anaheim, CA. Emily was immediately the pride and joy of her parents. From a very early age she showed signs of her artistic side; dance, music and art. Unfortunately she also showed early signs of CF. Despite these signs she was not diagnosed with CF until the age of 2 1/2.
Once diagnosed, she was placed on numerous medications and treatment plans to try and slow the progression of CF and get as healthy as possible. Each month Emily takes over 1100 pills, does 180 breathing or puffer treatments, has 15 hours of vest treatments and spends 120 hours on a feeding tube. Each month! While the treatments and doctors visits take many, many hours, this has not slowed Emily down.
Emily has an amazing passion for dance. For several years, she has been dancing competitively all over the Western United States as well as Florida in jazz, tap and lyrical dance competitions. She competes in both solo and group dances. Emily has also managed to maintain an A average every year she has been in school.
On July 18, 2010 Emily turned 15 years old. She continues to have a passion for dance winning many regional and national titles over the last several years with her dance team. She also continues with her daily battle with CF. Emily will be performing at the dinner on November 1.
To learn more about Emily’s battle with CF as well as her accomplishments, please visit www.emilysarmy.com. Remember, none of what she is able to do would be possible without your support. Please join us at the event to see Emily dance and raise funds to support the mission of the CF Foundation.